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Preliminary-- revised August 24,
1996
Research Round-up on
Community Health Workers in the US "The widespread incorporation of CHWs into the health delivery
system offers unparalleled opportunities to improve the delivery of preventive and primary
care to America's diverse communities."
-Pew Health Professions Commission, 1994
Over the last 25 years a body of research and writing has been built up on the role of
Community Health Workers in primary and community health care in the US. While some are
informal program descriptions, others are well-designed controlled research studies (see
two-volume set of abstracts Community Health Advisors, CDC). The purpose of this round-up
is to give a summary of some of the most interesting studies on CHWs, those which show the
power of the role of CHWs.
This research points toward a great potential for CHWs to play an expanded role in the US
health care system, particularly in the areas of chronic disease management, patient
navigation/utilization, prevention work and the provision of "enabling services"
such as medical and cultural translation, linkages to non-medical social services, etc.
Because CHWs do not work in isolation, but as members of community and primary health care
teams, this research fits into the wider context of research on primary and public health
care delivery.
It is clear from the record that there has never been a sustained line of research on role
and effectiveness of CHWs in primary and community health care. While very interesting,
the work is episodic and has a certain static quality: Many of the same issues being
investigated in 1970 have not advanced a quarter-century later. For example, a fascinating
1970 research study on CHW work in pediatric upper respiratory infections hangs in the
air, with no follow-up and no effort to apply and replicate the findings (Cauffman 1970,
below).
The notes are organized in the following sections:
- Overview/Literature Review
- Chronic Disease Management
- Patient Navigation/Utilizatio
- Prevention Work/Perinatal
- Other
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I. Literature Review: Overview
of CHW Potential
28 studies cited by Witmer et. al., show that CHWs can:
- Teach concepts of primary and secondary prevention and
improve access to prenatal care: 6 studies.
- Link hard-to-reach patients to needed services: 3 studies.
- Increase access to preventive care to Medicaid Kaiser
enrollees: 2 studies.
- Facilitate appointment-keeping: 8 studies.
- Increase compliance with prescribed regimens: 5 studies.
- Improve screening and early intervention in cancer (1),
immunization (1), infant mortality and low birth weight (4), hypertension control (1),
smoking cessation (3). Prevent unnecessary reliance on costly emergency department and
specialty services: (3)
The review was sponsored by the Pew Health Professions
Commission.
CHWs: Integral Members of the Health Care Workforce, AJPH, August 1995, Vol. 85, No. 8,
p 1055-1056.
II. Chronic Disease Management
Hypertension Control in Baltimore
This is a synthesis of a multi-pronged 15-year intervention in an inner-city African
American community. It involved targeted screening and detection of high blood pressure
(including peer outreach in churches and CHWs stationed in emergency rooms); continuing
community health worker training, and interventions using the media, area food markets and
fast-food restaurants to promote healthy lifestyles. A very significant element of the
program was community ownership of the community-based activities through a partnership
between the East Baltimore Heart, Body and Soul Program, and Johns Hopkins University.
In the initial five-year phase, the rate of control of hypertension in the intervention
group doubled from 38% to 79%, with a 35% decrease in hospitalization and 65% decrease in
mortality from uncontrolled hypertension. In the second eight-year phase, control of
hypertension among men rose from a baseline of 12% to 40% (p. 321).
Levine D, Becker D, Bone L. Narrowing the Gap in Health Status of Minority
Populations: A Community-Academic Medical Center Partnership. Am J. Prev Med 1992;8(5)
1992.
CHWs were used to screen for hypertension, provide risk reduction counseling, carry out
telephone preappointment reminders; and recontact no-shows. They worked in an inner city
adult emergency room at Johns Hopkins Hospital.
Study results indicate that CHWs can improve appointment keeping as well as assist in
screening and counseling for chronic conditions within the ER. Results of preappointment
reminders by CHWs showed a 19% improvement in appointment keeping. With a sample of
patients who had failed to return for a follow-up visit, CHW contact showed an overall
improvement rate of 7%.
Emergency Department Detection and Follow-up of High Blood Pressure, Bone, LR et al, Am J
Emer Med, 7(1): 16-20, Jan. 1989. Cited in Community Health Advisors, Vol. I, CDC, 1994,
p. 75.
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Hypertension Control in Mississippi
Researchers describe the use of community members as hypertension health counselors in a
five-county poor rural area in central Mississippi. Briefly-trained counselors: 1) managed
individual hypertensive clients; 2) organized high blood pressure management self-help
groups; 3) performed community activities such as blood pressure screenings and
dissemination of health education materials.
After 12 months, 5 counselors were managing 211 hypertensive clients, with over 90% having
achieved a controlled blood pressure (no pre/post data provided). Over the one-year
period, 1300 individuals were identified who were recently or previously diagnosed
hypertensives who subsequently entered the medical care system for treatment.
Frate DA, et. al, Selection, Training and Utilization of Health Counselors in the
Management of High Blood Pressure, Urban Health 12(5): 52-54, May 1983. Cited in Cited in
Community Health Advisors, Vol. I, Sept. 1994, CDC, p. 78-79.
Hypertension and Diabetes Control in Previously-Hospitalized Patients,
University of Baltimore
The University of Baltimore developed a CHW Outreach Program, targeting medical assistance
patients with diabetes and/or hypertension who had been hospitalized in the preceding 12
months. Briefly-trained community health volunteers followed 10 patients, visiting each
patient twice a month, calling the patient on alternate weeks, providing information about
other referrals and helping patients deal with Medical Assistance. The workers helped
patients keep regular appointments, follow their doctor's treatment advice/diets, monitor
glucose, and recognize early warning signs of serious illness.
Fedder CO. CHW Outreach Program, U. of Maryland, 1991, abstracted in Cited in Community
Health Advisors, Vol. I, Sept. 1994, CDC, p. 81-82.
Diabetes Control in Remote Native American Communities, IHS
Community Health Representatives were employed and trained by Indian Health Service to
work with public health nurses in monitoring people with diabetes on remote southwestern
Arizona reservations. The two CHRs coordinated diabetes field clinics, being responsible
for organizing transportation, equipment and supplies. They also led group teaching
sessions and food demonstrations, did intake and organized treatment. They assisted with
patient flow, performed foot checks, and acted as interpreters. They carried out home
visits and organized community agencies.
Landen JB, CHRs: The Vital Link in Native American Health Care, IHS Primary Care Provider
17(7): 101-102, July 1992. Cited in Community Health Advisors, Vol. I, Sept. 1994, CDC, p.
81.
Pediatric Asthma Control
In a large intervention study, a subset of 140 school-age inner-city African-American
children with asthma were enrolled in a program of home visits by CHWs. The purpose was to
obtain medical information and to teach basic asthma education to families. Results showed
that appropriately recruited and trained CHWs are effective in obtaining useful medical
information and in providing basic asthma education in the home.
Butz, AM, et. al, Use of CHWs with Inner-City Children Who Have Asthma. Clinical
Pediatrics, 33(3):135-141, March 1994. cited in Community Health Advisors, Vol. I, Sept.
1994, CDC, p. 147.
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III. Patient Navigation/Utilization
Preventing Unnecessary Emergency Room Use in New York
Inappropriate use of emergency rooms (ERs) is a major financial drain on health systems.
With 120,000 visits in 1991, the Presbyterian Hospital is the second largest emergency
department in New York State. The leading medical problems for which parents bring their
child to the emergency room are colds, ear infections and throat infections (UHF 1994 p.
14) Of the total annual visits to the pediatric emergency room at Presbyterian
Hospital, 80% were for nonemergent conditions. In the adult emergency department, 40%
of the visits were nonemergent. At the same time, Presbyterian's primary care clinics were
underutilized, and reported a broken appointment rate of 50% among first-time patients.
Presbyterian Hospital created a new CHW position to work with triage nurses in the
emergency departments. The CHW arranged to re-route patients to primary care appointments,
educated patients about the value of primary care, and followed up with patients to
determine their satisfaction.
Through the efforts of the community liaisons, the hospital found that the broken
appointment rate at its primary care clinics dropped from 50% to 11% over a three-year
period. Nonurgent emergency department visits by adults decreased by 42%. The percent
of patients who kept their first primary care appointment rose to 89%, and 61% of adults
and 51% of pediatric patients had no further ER visits. Patients went from being high
users of the ER and low users of the clinics, to high clinic users and low ER users.
As a result of this success, Presbyterian Hospital added permanent CHW liaison positions
to its staff, and was able to close one of its ER Rapid Evaluation units.
Cooke J and Finneran K. A Clearing in the Crowd: Innovations in Emergency Services,
United Hospital Fund of NY, 1994., p .11 and 12.
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IV. Prevention/Perinatal
Increasing Access to Preventive Services in an HMO Serving Medicaid Enrollees
Since 1971 Kaiser Hawaii has employed CHWs to increase Plan X5 Medicaid enrollees' access
to preventive services. Kaiser wanted a single point of contact--a CHW Health
Coordinator--from whom members could obtain information, advice in understanding how to
utilize Kaiser Permanente facilities, and linkages to other services not provided by
Kaiser Permanente, such as housing, food stamps, legal services and so forth.
Approximately 75% of CHW Health Coordinators' time is devoted to recruitment, enrollment
and orientation of eligible AFDC recipients--i.e. marketing. The current program emphasis
is on managing high risk members who are primarily pregnant, asthmatic or diabetic.
Roughly 10% of Medicaid enrollees have complex social, psychological and medical problems
which consume a great deal of the outreach team's time.
An Outreach team consisted of eight CHW Health Coordinators, 2.4 FTE Visiting Nurses, and
4.25 FTE administrative and clerical staff.
Results of program evaluations:
- Initially skeptical physician and nurse leaders expressed
the wish that all members could have outreach workers.
- Financing: During most of the two decades reviewed, the
capitated amount charged by Kaiser Permanente was 15-20% below fee-for-service Medicaid
charges. In recent years, the savings to the government has narrowed and is currently less
than five percent (p 5).
- Utilization: Plan X5 members use more preventive services
such as immunization than commercial group members. They make more visits to nurse
practitioners than other members, and less visits to specialists. The average utilization
of ambulatory care is almost identical to the utilization pattern of commercial members.
Knobel Richard F., "Medicaid and Managed Care with Kaiser Permanente in Hawaii,
"Remarks at a Conference on Medi-cal and Managed Care sponsored by the California
Association of HMOs, Sacramento CA Nov 17, 1992," and "Case Management in Kaiser
Permanente's Medicaid Program in Hawaii, "Remarks at the New Visions, New Ventures
Conference, Oakland CA December 5, 1992."
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V. Other
Pediatric Upper Respiratory Infections-Los Angeles
Researchers in the Pediatric Emergency Room of Los Angeles County-University of Southern
California Medical Center hypothesized that parents instructed by CHWs would be as likely
to comply with doctors' orders on the handling of an Upper Respiratory Infection as
parents instructed by physicians or public health nurses. Parents were randomly assigned
to receive instructions from CHWs, public health nurses, or pediatricians after the doctor
diagnosed an Upper Respiratory Infection. Among parents assigned to receive their
instructions from these groups, there was no difference in the level of compliance.
The CHWs had a high school education, and were either of African-American or Latino
backgrounds, representing the population attending the Pediatric Emergency Room.
This project demonstrated that CHWs can assume important responsibilities in health
education while working in a well-functioning health care team.
Cauffman JG, et. al, AJPH, 60(10): 1904-1909, October 1970., abstracted in
Community Health Advisors: Models, Research and Practice, Vol. I, Sept. 1994, p. 51, CDC.
Vicki Legion
CHW Training Program
1600 Holloway Avenue
San Francisco, CA 94132
415 338-3034
415 338-7948 (fax)
vlegion@sfsu.edu
(Please obtain permission before quoting.)
fn: researchroundup/pr
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There is exciting potential for the San Francisco Bay Area
to take a national leadership role in pushing research and policy questions ahead. There
is a remarkable constellation of resources concentrated here:
- A city Department of Health (San Francisco) with a strong
commitment to the potential role of health workers;
- A state California Conference of Local Health Officers
whose leadership is committed to CHWs;
- Dynamic community organizations with long histories in the
CHW field, and strong CHW leaders;
- A strong partnership of a state university and community
college with a deep commitment to CHWs, as well as a proven applied research and training
record, and the ability to prepare a wide range of health professionals: San Francisco
State University and City College of San Francisco.
- A leading health national professional education and policy
institute with a commitment to CHWs, the Pew Health Professions Commission at UCSF
Because of the promise shown in these studies, the CHW
Training Program advocates for a significant social investment in expanding and
systematizing this body of research. This investment by government and private funders
should be of a parallel scope and scale to that made in proving the effectiveness of
mid-level practitioners in primary health care. To establish the nurse practitioner and
physician's assistant fields, a significant investment was made in research, national
training centers, and policy work.
Related to the health delivery research questions, there is a need for exploration of the
health policy questions regarding CHWs and community health teams. What have been the
policy and reimbursement issues that have kept the Community Health Worker role from
developing further here in the US? Does the current flux in the health system open new
potential for the field to advance?
© SFSU/CCSF Community Health Works of San Franciso, 1997.
For more information contact: CHTDC, Department of Health Education, 1600 Holloway Ave.,
San Francisco, CA 94132.
Phone: 415/338-3034 Fax: 415/338-7948 Email: chw@sfsu.edu
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