Resources





		RESOURCES We have made an effort to include the major asthma organizations and resources. Asthma is a rapidly expanding area of interest, however, so we may have missed some and new resources emerge all the time. For this reason, we have also included sites that have regularly updated, extensive resource pages. We have included a selection of additional resources not specific to asthma that may be useful for a prevention-oriented children's asthma program. These include resources that address some of the social and economic barriers your patients and families face, as well as resources that may help you plan, develop, run, and improve your asthma program. Patient Education Resources For the patient handouts and health education materials, we have been very selective, recommending only those that we think are the very best. What we mean by that is that they follow NIH Guidelines (NHLBI-EPR2) and present the most current information based on up-to-date research. We have also selected items that are available in multiple languages, represent people and families of diverse backgrounds and ethnicities, and use appropriate literacy levels so as to be widely accessible to your patients. Be aware that knowledge about asthma is still changing fairly rapidly, and treatment approaches are getting better. It will be important to update your patient education materials regularly so that they continue to reflect the most current guidelines and evidence-based practices. American Academy of Allergy, Asthma and Immunology (AAAAI) Just4Kids and other patient education resources http://www.aaaai.org/patients/just4kids/ American College of Chest Physicians Very good patient education booklets. English, Spanish http://www.chestnet.org/downloads/ American Lung Association (ALA) Asthma camps for kids http://www.asthmacamps.org/asthmacamps/ Dr. Tom Plaut's Asthma Guide for People of All Ages Thomas F. Plaut, M.D with Teresa B. Jones, M.A. Pedipress, 1999. This book is a good resource both for your patients, and as a tool for staff, for improving asthma education skills. Chicago Asthma Consortium Numerous resources and links or information about other available resources. http://www.chicagoasthma.org Control Your Child's Asthma: A Breakthrough Program for the Treatment and Management of Childhood Asthma. Harold J. Farber, MD and Michael Boyette. Henry Hold & Co., 2001. An excellent book for your English-literate patients, and a great resource for asthma program staff, for developing more effective patient education skills and approaches. Kaiser Permanente "Your Child and Asthma" video. English, Spanish, Mandarin, Cantonese. $9.40 including shipping http://www.kaiserpermanente.org/toyourhealth/video/html Krames Patient Education Products Somewhat expensive but updated regularly. In English and Spanish, at appropriate literacy level http://65.201.6.68/krames/ (look under "Pulmonary Disease") National Initiative for Children’s Healthcare Quality http://www.nichq.org/resources/ New York City Childhood Asthma Initiative Medication Factsheets http://www.nyc.gov/health/asthma (See Health Care Provider Information section) Pedipress, Inc. Asthma Peak Flow Diary 800-611-6081 Public Broadcasting Service "Buster’s Breathless" video http://www.pbskids.org/arthur (see Arthur section of website) Regional Asthma Management and Prevention (RAMP) Asthma action plans and other patient education resources http://www.rampasthma.org Starbright Foundation "Quest for the Code" video game. English and Spanish http://www.starbright.org; 800-315-2580 ZAP Asthma Adventure comic book http://www.sph.emory.edu/zapasthma/comics.htm Allergy and Tobacco Control Products Pharmaceutical companies and asthma supply vendors often can give you free asthma education materials, such as videos, handouts, games, sample peak flow meters, spacers, and the like. Peak flow meter companies may have tools for calculating peak flow percentages. Ask the drug company representatives who come to your clinic or contact drug companies directly. Before using these materials with your patients, be sure to review them to make sure that the information they teach about asthma matches NIH Guidelines. Allergy Control Products, Inc. 800-422 3878 National Allergy Supply 800-522 1448 Tobacco Cessation Programs and Support American Cancer Society 800-ACS-2345 American Lung Association 800-LUNG-USA California Smoker’s Helpline English, Spanish, Mandarin, Cantonese, Korean, hearing impaired Free phone counseling for California residents, free materials and brochures. http://www.californiasmokershelpline.org; 800-766-2888 Nicotine Anonymous See website or call information for local listing. http://www.nicotine-anonymous.org For Asthma Program Staff Major Asthma Organizations, Medical Organizations, and Chronic Care Organizations Allergy & Asthma Network Mothers of Asthmatics http://www.aanma.org Allies Against Asthma An initiative of the Robert Wood Johnson Foundation, supporting national asthma coalitions. Has an extensive resource library of asthma materials. http://www.asthma.umich.edu/ American Academy of Allergy, Asthma and Immunology http://www.aaaai.org; 800-822-2762 American College of Chest Physicians www.chestnet.orgAmerican Academy of Pediatrics (AAP) http://www.aap.org American College of Allergy, Asthma, and Immunology http://allergy.mcg.edu American Lung Association http://www.lungusa.org; 800-586-4872 American Medical Association http://www.ama-assn.org Asthma and Allergy Foundation of America http://www.aafa.org; 800-7-ASTHMA Asthma and Schools http://www.asthmaandschools.org Community Action to Fight Asthma (CAFA) An initiative of The California Endowment. Central focus is on reducing environmental asthma triggers for school aged children. http://www.calasthma.org California Department of Health Services California Asthma Initiative http://www.dhs.cahwnet.gov/ps/cdic/cdcb/Medicine/Asthma.html.cai.htm Center for Asthma Treatment http://www.cmh.edu/asthma Center for Health Care Strategies Areas of interest include improving care in Medicaid managed care, and fostering sustainability. http://www.chcs.org Centers for Disease Control and Prevention (CDC) "Interventions" section describes evidence-based interventions. YES WE CAN included (late 2004). http://www.cdc.gov http://www.cdc.gov/nceh/airpollution/asthma/ Medicare http://www.hcfa.gov National Heart, Lung, and Blood Institute (NHLBI) National Asthma Education Prevention Program Institute http://www.nhlbi.nih.gov; http://www.nhlbisupport.com/asthma The New England Journal of Medicine http://www.nejm.org SchoolAsthmaAllergy.com http://schoolasthmaallergy.com Asthma Articles, Lists of Articles, and Journals "Achieving Better Care for Asthma," Patricia J. Barta http://www.chcs.org American Academy of Allergy, Asthma and Immunology (AAAAI) http://www.aaaai.org/aadmc/currentliterature/selectedarticles/index.html "Breathing Easy: Solutions in Pediatric Asthma" Lauren Raskin, MPH http://www.mchlibrary.info/documents/asthma.html (also available via RAMP) Centers for Disease Control National Asthma Control Program http://www.cdc.gov/asthma "Poor Readability of Written Asthma Management Plans Found in National Guidelines," Pediatrics, 2002: 109(4) http://www.pediatrics.org/cgi/content/full/109/4/e52 UCLA Center for Health Policy Research http://www.healthpolicy.ucla.edu Clinical Tools Central California Asthma Project Color flyer on asthma relievers and controllers, with pictures of inhalers http://www.rampasthma.org; 559-446-2323 or 800-586-4872 National Asthma Education and Prevention Program "Guidelines for the Diagnosis and Management of Asthma" http://www.nhlbi.nih.gov/about/naepp National Initiative for Children’s Healthcare Quality "Classification of Asthma Symptom Severity and Therapy" http://www.nichq.org/resources/ (click "Medication and Severity Poster") Home Environment Assessment and Remediation Tools Environmental Protection Agency "A Brief Guide to Mold, Moisture, and Your Home" http://www.epa.gov/aiq/molds; 800-438-4318 California Department of Health Services Indoor Air Quality Information Sheet "Mold in My Home: What Do I Do?" http://www.cal-iaq.org/MOLD Program Implementation and Management Tools "Community Toolbox" Tools for community assessment, strategic planning, organizing and evaluating http://ctb.ku.edu/ Quality Improvement Organizations Agency for Healthcare Quality http://www.ahrq.gov Center for Health Care Strategies, Inc. http://www.chcs.org Child and Adolescent Healthcare Quality Improvement ListServ request-nichq-qi@ls.ihi.org (type Subscribe in body of message) Cochrane Child Health http://www.cochrane.org Improving Chronic Care A center that has played an important role in articulating and broadening understanding of chronic conditions management. http://www.improvingchroniccare.org Institute for Healthcare Improvement http://www.ihi.org Management Sciences for Health Electronic Resource Center http://www.msh.org/ National Asthma Educator Certification Board http://www.naecb.org National Committee for Quality Assurance http://www.ncqa.org Social Care Management Resources and Advocacy Resources: Insurance, MediCal/Medicaid, Immigration, Welfare, etc. Action Alliance for Children http://www.4children.org California Immigrant Welfare Collaborative • Immigrants Without Green Cards: Immigrant Benefits Handbook • "New INS Guidance on ‘Public Charge’: When is it safe to use public benefits?" http://www.nilc.org/ciwc/; 916-448-6762 Center for Third World Organizing Home of GROWL, a coalition of welfare reform advocates. http://www.ctwo.org Children Now "California Report Card 2002: Children’s Critical Early Years" http://www.childrennow.org Coleman Advocates for Children and Youth • "A Quick Guide to Civic Involvement for Parents and Youth" booklet • "Stand Up, Speak Out: Building a Children’s Movement" video Tips, tools, and examples that will help you get started in advocating for change http://www.colemanadvocates.org Community Action to Fight Asthma An initiative of The California Endowment. Central focus is on reducing environmental asthma triggers for school aged children. http://www.calasthma.org "Defending Immigrant Rights: An Activist Resource Kit," Feb. 2002 Available from Political Research Associates prg@igc.org, http://www.publiceye.org; 617-666-5300 Environmental Working Group • "The Clean Air Color Line: Why Non-Anglo Californians Will Benefit Most From New State Particulate Standards," June 18, 2002 Report from "Dirty Air a Cause of Death for More Than 9,300 Californians Each Year" • "Particle Civics: How Cleaner Air in California Will Save Lives & Save Money" http://www.ewg.org/reports/particlecivics/ Food First, Institute for Food and Development Policy Fact sheets on welfare reform and related topics. http://www.foodfirst.org How We Measure Poverty http://lilt.ilstu.edu/gmklass/pos209/fall01/measures/how.htm National Health Law Program (Nhelp) • "Getting the Best Out of Managed Care, #1" • "Immigrant Access to Health Benefits: A Resource Manual" http://www.healthlaw.org National Network for Immigrant and Refugee Rights http://www.nnirr.org; 510-465-1984 Resources for Use In and With Schools American Academy of Allergy, Asthma and Immunology School Nurse Allergy and Asthma Tool Kits http://www.aaaai.org/members/allied_health/tool_kit/ American Lung Association Open Airways for Schools curriculum http://www.lungsusa.org American Lung Association of Washington • Taking Asthma Care to School • Asthma Management in Educational Settings http://www.cshcn.org Environmental Protection Agency • Indoor Air Quality Tools for Schools • Managing Asthma in the School Environment http://www.epa.gov/iaq National Asthma Education and Prevention Program • Managing Asthma: A Guide for Schools • How Asthma Friendly is Your School? • Asthma Awareness Curriculum • Asthma and Physical Activity http://www.nhlbi.nih.gov National Asthma Education and Prevention Program School Asthma Education Slide Set http://www.nhlbi.nih.gov Centers for Disease Control Strategies for Addressing Asthma Within a Coordinated School Health Program http://www.cdc.gov/healthyyouth